Baby has parts of skull removed in operation after rare condition diagnosis

A baby boy underwent major surgery to remove parts of his skull after a rare condition caused it to grow abnormally.

Little George Johnson was just 16-weeks-old when he had two sections of bone removed from his head.

The tot was born in August 2020 with two different types of craniosynostosis.

The birth defect caused bones in his skull to fuse together too early, before his brain has fully formed.

Without the operation, the condition could have affected how his brain developed and lead to serious complications.

These can include increased pressure in the brain, seizures, vision issues and developmental delays.

Mum Beverly Fothers, 34, from Yarm, North Yorkshire, told Gazette Live : “I thought there’s something seriously wrong.

“I googled it and petrified myself with the condition as the only treatment is surgery.

“I cried for about three days and I didn’t say anything to my partner.

Beverley found a support group and was advised to seek the advice of a specialist nurse at Alder Hey children’s hospital in Liverpool.

She said that the nurse confirmed George had Sagittal craniosynostosis at the back of his head and advised her to get a referral to the hospital from her GP.

Beverley, who is also mum to Joshua, 13, and Zac, nine, said: “People don’t know about this condition. There’s not a lot of research about it.

“It’s hard to pick up early on. When you have a baby you want everything to be perfect.”

In December last year, when George was four-months-old, he underwent an operation on the part of his skull which had come together too early.

While in surgery, medics discovered that bones at the front and side of his head had also fused together, known as coronal craniosynostosis.

They also opened up that part of his skull, during the six hour operation at the hospital on Merseyside.

Following the surgery, George was left with a zig zag scar from ear to ear, across the top of his head.

Beverley said that the affected parts of his head felt like a “sponge” as they were soft with no bone.

The mum-of-three, who is a nurse at James Cook University Hospital in Middlesbrough said: “We managed to get him an operation at 16 weeks.

“George had bits of his skull taken out so it could regrow again.

“That was the first time me and George had been separated since he had been born.

“They can have a stroke while having it or a bleed on the brain.

“It was really difficult, awful.”